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Tilly was part of a gene therapy clinical trial at Sheffield Children's Hospital in 2024 to try to help reduce seizures connected to her condition.
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Amid such rising demand, it’s understandable that researchers worried when Morocco reduced exports of agarophytes in 2015. This shortage — due to a combination of overharvesting, climate warming, and an economic shift to internal manufacturing in the North African country — not only caused alarm but a three-fold price increase of wholesale bacteriological agar, which reached $35-45 per kilogram. (At the time of writing this in late 2025, factory agar prices are sitting at about $30 per kilogram, according to Cobos.)